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CLINICAL PROGRAM
ACT
is a community-based service in which an
interdisciplinary mental health/psychiatric team
delivers comprehensive treatment, rehabilitation
and support services to clients with severe and
persistent mental illness. The most realistic
way to conceptualize why and how ACT works is
that it functions as a replacement for a
substantial proportion of the services which
have traditionally been provided on long term
psychiatric hospital inpatient units. This is
more informative than comparing it with
outpatient mental health services or the usual
range of clinical case management services.
Similar to multidisciplinary inpatient teams on
long term units, most ACT services are provided
within the ACT team itself without referring
clients to multiple community mental health
providers (Allness 1997, Lehman 1997). A single
team with a full range of mental health
professional staff is responsible for providing
a comprehensive array of specialized psychiatric
and mental health services and supports
24/7/365. Thus ACT essentially functions as a
complete “mini-system” of care in the community.
ACT TARGET
POPULATION
ACT is only required for
approximately 10% of persons with severe
mental illness (SMI), since the other 90%
can be effectively served by the usual array of
community mental health services such as
clinical case management, case management with
an outreach component, office based psychiatric
consultation and follow-up and rehabilitation
programs etc. The ACT target population consists
of people with SMI who have been unable to
benefit fully from the usual array of community
services, but they no longer require inpatient
care. To meet ACT criteria, they:
-
Have severe and
persistent psychotic disorders as their
primary diagnosis (schizophrenia,
schizoaffective, severe bipolar disorder,
other persistent psychoses)
-
Have frequent hospital
admissions
-
Have long hospital stays
-
Experience frequent
crises
-
Use frequent crisis and
emergency services (i.e. when hospital beds
are unavailable due to system downsizing,
geographic area, system imbalance with more
patients but same number of beds)
-
Also have drug and/or
alcohol problems
-
Have high needs in many
areas of life
-
Experience marked
functional impairments in adult roles
-
Have multiple
co-morbidities (e.g. psychiatric, including
Axis II problems co-morbid with psychosis,
medical, psychosocial, forensic)
-
Are unwilling or unable
to come in for services
-
Are unwilling or unable
to take medications regularly
-
Are unable to self
monitor
-
Are unable to structure
activities
-
Need significant
psychological support
-
Need case management
services due to intense needs (e.g. at least
10 hours per month ‘in vivo’ services)
-
Are able to live safely
in the community if they have appropriate
and sufficiently intensive supports (i.e.
ACT is not effective for persons who are so
disabled by severe mental disorders and
impairments that they are unable to cope
with being by themselves during the day or
unable to sleep safely overnight without on
site staff supervision)
CASELOADS
AND STAFFING
A typical urban ACT team
serves from 60 to 100 (or sometimes more)
clients when the team has reached its capacity.
Similar to inpatient care, there is a definite
upper limit to capacity of an ACT team with a
given staffing level. This is unlike the usual
outpatient service in which teams often carry
caseloads well over an appropriate benchmark.
The lower caseloads (60) are for teams that
serve only patients who have the highest
intensity of need due to multiple complex
co-morbidities (e.g. many co-existing
psychiatric and medical diagnoses and
psychosocial, criminal justice problems etc) or
rural teams which serve a very large geographic
area. The higher caseloads (100+) are for ACT
teams that have a lower percentage of such high
needs patients, or have added staff to serve
extra clients.
The ACT team’s caseload is
built up slowly over at least two years, since
ACT teams can only stabilize a small number of
clients at any one time. Most ACT clients live
in regular community housing immediately after
being “admitted” to ACT services (i.e. often
their own apartments, non mental health
housing). The main stabilizing force for clients
is the frequency, duration and quality of
contacts with ACT staff who build relationships
by meeting clients’ needs in all domains of life
in which there are unmet needs, according to a
carefully constructed and client-centred
treatment/rehab/recovery plan. In order to
carry out all aspects of such a plan, some of
the highest need clients will need 3 or more
contacts with staff every day (7 days per week)
for many months, or even years if they continue
to remain “stably unstable”. This frequency of
contact means that ACT teams are able to treat
even traditionally “non-adherent” SMI clients
with the most effective oral psychiatric
medications. If needed, all doses of medication
7 days per week can be delivered personally by
staff with whom the clients have an ongoing
therapeutic relationship. This level of
intensity and daily integration of diverse
services with sufficient staff to do whatever is
needed, also means that ACT teams can
immediately (even within hours) shift their
focus to whatever stage of illness or recovery
in which the clients are at a given time.
In order to meet all ACT
clients’ needs and provide comprehensive,
integrated treatment, rehabilitation and support
24/7/365, at a level of intensity that can
substitute for most of the care that has
traditionally been delivered in long term
psychiatric inpatient units, ACT teams operate
with 2 shifts per day (approx 8-4 and 130-930)
Monday to Friday and one shift per day (2 staff
9am to 5pm) weekends and holidays. This overlap
of shifts allows as many team members as
possible to be present for treatment/rehab
planning meetings and team business meetings,
which occur in the 130pm to 4 pm time slot. The
evening staff coverage prevents most crises that
could not be resolved earlier in the day and
facilitates delivery of HS meds, which is very
important to improve adherence to best practice
medications for treatment resistant
schizophrenia. After hours is optimally covered
by on call team staff who are very familiar with
the clients, and can resolve most crises over
the telephone with rare outreach visits. In some
jurisdictions labour agreements have prevented
this and on-call coverage is done in other ways.
The psychiatrist on call coverage is done
through the local duty doctor system.
An urban ACT team has
10.5 – 11.5 multi-disciplinary mental health
professionals:
-
nurses (at least 3)
-
social workers (2)
-
occupational therapists
(1-2); or 1 OT and 1 RT
-
vocational specialists
(1–2)
-
half time peer support
worker
-
addictions specialist
(1-2) - could be one of the other clinicians
such as nurse or sw with addictions training
-
at least .6 FTE
psychiatrist (if the psychiatrist does not
act as attending doctor when team clients are
admitted to hospital). Will need at least .8
FTE psychiatrist (if team Dr is the
attending psychiatrist for inpatient
admissions)
-
One of the mental health
clinicians (not the psychiatrist) is the
team coordinator ½ time and does clinical
duties ½ time. Some teams have a full time
manager who manages two ACT teams, but this
is not the ideal situation for optimal team
functioning.
Each ACT teams also has 1 FTE
office support staff who carries out multiple
functions (office manager, receptionist,
secretarial, clerical etc).
Rural teams
will have staffing modifications to suit the
context.
Reference: Ontario
Ministry of Health and Long Term Care. Ontario
Program Standards for ACT Teams. Second Edition
October 2004, Updated January 2005. Full text
of standards (41 pages) available free from the
Ontario MOHLTC website.
CRITICAL
INGREDIENTS OF
ACT
- Assertive outreach to client,
family, natural supports and community
-
Client-centred
approach. Services are defined by the needs
and choices of the consumer, focused on
strengths, and delivered in as convenient a
way as possible for the client.
-
Interdisciplinary team
-
Comprehensive
services: the entire range of services to
meet clients individual needs are provided
by or through the ACT team. These include
medication management, medication
administration (every dose if needed),
psychotherapy, skills training, money
management, vocational services using the
individual placement and support (IPS)
model, supported education, housing support,
family support, psychoeducation, physical
health, and assistance with finding the
usual range of community services for
personal growth such as recreation,
spirituality etc.
-
Fixed point of
responsibility 24/7/365 for all domains
of community living
-
Integrated
treatment, rehabilitation and support.
Individualized “recovery plans’ (care plans)
covering all aspects of treatment,
rehabilitation and support are integrated
into the client’s daily life in the
community regardless of where they live.
Daily team meetings in which all team
clients are discussed allows ACT staff to
continuously adjust care plans to meet
clients’ changing needs, prevent crises and
help clients move seamlessly from illness to
stability to recovery.
-
“in vivo” services.
Services are organized to fit the client’s
life in the community and are delivered
where client lives, works and plays, at
times that are convenient to client.
-
24 hour service
availability from the team
-
Small caseloads (allow
the services to be provided as described
above)
-
ongoing, unlimited
duration, as long as they are needed by the
client
When properly implemented
according to the research evidence, ACT has
proven efficacy and effectiveness with SMI
clients in many RCTs (Marx 1973, Stein 1975 &
1980, Test 1978, Bond 1988, 1990, 1995 & 2001,
Thompson 1990, McGrew 1995, Scott 1995, Allness
1997, Morse 1997). Similar overall results were
seen in the USA and in adaptations of ACT in
Britain, Australia, Europe, Africa and Canada
(see all the references below). Meta-analyses
have confirmed the efficacy of ACT (Marshall
2000, Ziguras 2000, Holloway 2001).
“Pseudo-implementation” does
not work (i.e. the outcomes that are described
in the literature do not occur, or are much less
than expected for ACT). This occurs when
decision-makers call it ‘ACT’, but it is not
actually implemented according to the research
evidence on the full ACT model.
Examples of pseudo-implementation
of ACT include:
-
insufficient budget
-
1-4 staff – unable to
cover 24/7/365
-
Team operates 5 days per
week during regular business hours only
-
not all disciplines on a
team
-
caseloads too high
-
only one discipline on
the team
-
no psychiatrist on the
team
-
serving a target
population for which there is no evidence of
ACT’s effectiveness (e.g. primary
diagnosis of borderline personality
disorder, intellectual disability, recurrent
unipolar depression. However, all of these
can be secondary diagnoses if the main
diagnosis is a psychotic disorder.
-
not actually delivering
services in vivo (eg. some outreach, but
majority is in office)
-
insufficient intensity of
service. Example: patient contacts can only
1 – 2 times weekly, which is assertive case
management (ACM), not the fully implemented
evidence-based ACT model.
-
no daily team meetings
-
individual caseloads
instead of team shared caseloads
-
“ACT” as a short term or
transitional service
-
rehabilitation services
brokered out to other community mental
health services
-
ACT team starts out by
using the research-based model, but
gradually takes on a high caseload and
drifts into more clinic-based care since
staff are no longer able to follow the
critical ingredients
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